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    Craniosynostosis

    Craniosynostosis



    Other Places To Get Help

    Organizations

    National Institute of Neurological Disorders and Stroke
    NIH Neurological Institute
    P.O. Box 5801
    Bethesda, MD  20824
    Phone: 1-800-352-9424
    Phone: (301) 496-5751
    TDD: (301) 468-5981
    Web Address: www.ninds.nih.gov
     

    The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It provides the public with educational materials and information about these disorders.


    Children's Craniofacial Association (CCA)
    13140 Coit Road
    Suite 517
    Dallas, TX  75240
    Phone: 1-800-535-3643
    (214) 570-9099
    Fax: (214) 570-8811
    Email: contactCCA@ccakids.com
    Web Address: www.ccakids.org
     

    CCA is a nonprofit agency that helps address the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's services are for people who have facial differences and for their families. The Web site has information on resources, family networking, medical centers, and more.


    KidsGrowth.com: Pediatric Health Care Alliance, P.A.
    P.O. Box 1068
    Oldsmar, FL  34677
    Web Address: www.kidsgrowth.com
     

    The KidsGrowth website, created by pediatricians, has children's health resources for parents and teens. It offers a free newsletter and information about child development, behavioral issues, and illnesses. The TeenGrowth interactive website (www.teengrowth.com) offers a secure environment for teens to get valuable information on topics such as alcohol, drugs, emotions, health, family, friends, school, sex, and sports.




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