Health Information
Cystic Fibrosis
Other Places To Get Help
Organizations
| Cystic Fibrosis Foundation | |
| 6931 Arlington Road | |
| Bethesda, MD 20814 | |
| Phone: | 1-800-FIGHT CF (1-800-344-4823) (301) 951-4422 |
| Fax: | (301) 951-6378 |
| Email: | info@cff.org |
| Web Address: | www.cff.org |
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The CFF coordinates, supports, and accredits cystic fibrosis centers and programs, supports research, and advocates for patients. You can find information about things like treatment, care centers, clinical trials, and staying healthy. You can also buy medicines from the online pharmacy. |
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| Genetics Home Reference, U.S. National Library of Medicine | |
| 8600 Rockville Pike | |
| Bethesda, MD 20894 | |
| Phone: | 1-888-FIND-NLM (1-888-346-3656) |
| Fax: | (301) 402-1384 |
| TDD: | 1-800-735-2258 |
| Web Address: | www.ghr.nlm.nih.gov |
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The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families. |
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| KidsHealth for Parents, Children, and Teens | |
| 10140 Centurion Parkway North | |
| Jacksonville, FL 32256 | |
| Phone: | (904) 697-4100 |
| Fax: | (904) 697-4220 |
| Web Address: | www.kidshealth.org |
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This website is sponsored by the Nemours Foundation. It has a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This website offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly emails about your area of interest. |
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| March of Dimes | |
| 1275 Mamaroneck Avenue | |
| White Plains, NY 10605 | |
| Phone: | (914) 997-4488 |
| Web Address: | www.marchofdimes.com |
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The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. |
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| National Heart, Lung, and Blood Institute (NHLBI) | |
| P.O. Box 30105 | |
| Bethesda, MD 20824-0105 | |
| Phone: | (301) 592-8573 |
| Fax: | (240) 629-3246 |
| TDD: | (240) 629-3255 |
| Email: | nhlbiinfo@nhlbi.nih.gov |
| Web Address: | www.nhlbi.nih.gov |
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The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating:
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| By: | Reference Healthwise Staff | Last Revised: Reference March 12, 2012 |
| Medical Review: | Reference John Pope, MD - Pediatrics
Reference Susanna McColley, MD - Pediatric Pulmonology |
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This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Reference Terms of Use. Reference How this information was developed to help you make better health decisions.


