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    Klinefelter Syndrome

    Klinefelter Syndrome



    Other Places To Get Help

    Organizations

    American Association for Klinefelter Syndrome Information and Support (AAKSIS)
    c/o Roberta Rappaport, 2945 West Farwell Avenue
    Chicago, IL  60645-2925
    Phone: 1-888-466-5747
    Email: KSinfo@aaksis.org
    Web Address: www.aaksis.org
     

    The American Association for Klinefelter Syndrome Information and Support (AAKSIS) is a national volunteer association with the mission of education, support, research, and understanding of 47 XXY and its variants, collectively known as Klinefelter syndrome.


    Hormone Foundation
    8401 Connecticut Avenue
    Suite 900
    Chevy Chase, MD  20815-5817
    Phone: 1-800-HORMONE (1-800-467-6663)
    Web Address: www.hormone.org
     

    The Hormone Foundation is a nonprofit organization started by the Endocrine Society. The organization promotes the prevention, treatment, and cure of hormone-related conditions through public outreach and education.


    Klinefelter Syndrome and Associates (KS&A)
    11 Keats Court
    Coto de Caza, CA  92679
    Phone: 1-888-XXY-WHAT (1-888-999-9428)
    Fax: (949) 858-3443
    Web Address: http://genetic.org
     

    KS&A is focused on Knowledge, Support, and Action. It's a nonprofit education and support organization for people who have Klinefelter syndrome or other conditions caused by extra X and/or Y chromosomes.


    March of Dimes
    1275 Mamaroneck Avenue
    White Plains, NY  10605
    Phone: (914) 997-4488
    Web Address: www.marchofdimes.com
     

    The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care.


    National Institute of Child Health and Human Development
    P.O. Box 3006
    Rockville, MD  20847
    Phone: 1-800-370-2943
    Fax: 1-866-760-5947 toll-free
    TDD: 1-888-320-6942
    Email: NICHDInformationResourceCenter@mail.nih.gov
    Web Address: www.nichd.nih.gov
     

    The National Institute of Child Health and Human Development (NICHD) is part of the U.S. National Institutes of Health. The NICHD conducts and supports research related to the health of children, adults, and families. NICHD has information on its Web site about many health topics. And you can send specific requests to information specialists.




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