Extrahepatic Biliary Atresia
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Extrahepatic Biliary Atresia is not the name you expected.
Extrahepatic biliary atresia is a rare gastrointestinal disorder characterized by destruction or absence of all or a portion of the bile duct that lies outside the liver (extrahepatic bile duct). The bile duct is a tube that allows the passage of bile from the liver into the gall bladder and, eventually, the small intestine. Bile is a liquid secreted by the liver that plays an essential role in carrying waste products from the liver and promoting absorption of fats and vitamins by the intestines. In extrahepatic biliary atresia, absence or destruction of the bile ducts results in the abnormal accumulation of bile in the liver. Affected infants have yellowing of the skin and whites of the eyes (jaundice) and scarring of the liver (fibrosis). In some cases, additional abnormalities may be present, including heart defects and intestinal, spleen and kidney malformations. The exact cause of extrahepatic biliary atresia is unknown.
American Liver Foundation
- 39 Broadway, Suite 2700
- New York, NY 10006
- Fax: (212)483-8179
- Tel: (800)465-4837
- Email: http://www.liverfoundation.org/contact/
- Website: http://www.liverfoundation.org
Canadian Liver Foundation
- 3100 Steeles Avenue East Suite 801
- Markham Ontario, L3R 8T3
- Tel: 4164913353
- Fax: 9057521540
- Tel: 8005635483
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- Website: http://www.liver.ca
Childhood Liver Disease Research and Education Network
- c/o Joan M. Hines, Research Administrator
- Children's Hospital Colorado
- Aurora, CO 80045
- Tel: (720)777-2598
- Fax: (720)777-7351
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- Website: http://www.childrennetwork.org
Children's Liver Association for Support Services (C.L.A.S.S.)
- 25379 Wayne Mills Place, Suite 143
- Valencia, CA 91355
- Tel: (661)263-9099
- Fax: (661)263-9099
- Tel: (877)679-8256
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- Website: http://www.classkids.org
Children's Liver Disease Foundation
- 36 Great Charles Street
- Birmingham, B3 3JY
- United Kingdom
- Tel: 1212123839
- Fax: 1212124300
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- Website: http://www.childliverdisease.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
March of Dimes
- 1275 Mamaroneck Avenue
- White Plains, NY 10605
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- Fax: (914)997-4763
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- Website: http://www.marchofdimes.org and nacersano.org
NIH/National Institute of Diabetes, Digestive & Kidney Diseases
- Office of Communications & Public Liaison
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- Bethesda, MD 20892-2560
- Tel: (301)496-3583
- Email: NDDIC@info.niddk.nih.gov
- Website: http://www2.niddk.nih.gov/
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 3/7/2012
Copyright 2012 National Organization for Rare Disorders, Inc.
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