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Beyond Consent: Patient Preferences for Governance and Use of Clinical Data and Samples

Description

This project utilizes mixed methods to identify patient preferences for consent and governance of data in research utilizing existing electronic medical record data and biobank samples.

PI is Sandra Soo-Jin Lee, Ph.D., Stanford University.

Principal Investigator

External PI, Principal Investigator

Recruitment Status

Active, Recruiting

Funder

National Institutes of Health/National Library of Medicine

Start Date

December 01, 2014

End Date

November 30, 2017

Research Topics

  • Disease Management
  • Health Policy
  • Medical Informatics

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