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Content

Using Mobile Technology and Analytics to Track Outcomes in MS Patients

Study Information

Locations

Not Specified

Clinical Trial FAQs

Information for patients and study volunteers, including frequently asked questions.

Description

The goal of this project is to develop and pilot test an early-stage prototype-protocol to routinely obtain patient-generated data (PGD) by mobile phone application.

This proposal involves integrating a mobile application (Floodlight) for collection of PGD between visits into existing infrastructure, translating PGD data into a clinically useful format, pilot testing options for summarizing and presenting this information to providers, and identifying key drivers of adoption of the protocol for both patients and providers.

Principal Investigator

J.B. Jones, PhD, MBA

Co-Investigator(s)

Xiaowei (Sherry) Yan, PhD, MS 

Funder

Genentech Foundation

Related Studies

COVID-19 Impacts on Cancer Care Management, Patient Experience and Care Costs

Project goals: To understand impacts of COVID-19 on cancer care management (detection, diagnosis, treatment), pt-reported experience, and cancer care costs.

Investigators: Su-Ying Liang, Ph.D., Monique de Bruin, M.D., MPH, Cheryl Stults, Ph.D. 

Stupski Serious Illness Program Evaluation

Evaluate palliative care projects at seven healthcare organizations in the SF Bay Area.

Investigator: Sylvia Sudat, PhD 

Impact of COVID-19 on Cancer Care Management

Study will enhance understanding of cancer care management due to COVID-19.

Investigators: Su-Ying Liang, Ph.D., Monique de Bruin, M.D., MPH 

Quantifying 2D and 3D MRI Imaging For Improving MS Diagnosis, Treatment, And Clinical Care

Create a longitudinal proof-of-concept MS research database (MSClinQ) that can support clinical queries, and can be updated with new tx, dx tools, care options

Investigators: Xiaowei (Sherry) Yan, PhD, MS, J.B. Jones, PhD, MBA 

Improving Cancer Care

Project will provide information about referrals to palliative care and way to enhance goals of care discussions for patients diagnosed with stage IV cancer.

Investigator: Su-Ying Liang, Ph.D. 

Major Depressive Disorder

Purpose is to use EHR to understand the management of major depressive disorder in a large healthcare system, to incorporate pt-reported data in care workflow.

Investigator: Kristen M.J. Azar, R.N., BSN, MSN/MPH 

Transforming Primary and Specialty Care for Inflammatory Bowel Disease

Use healthcare data to personalize the healthcare experience for people with inflammatory bowel disease.

Implementing Universal Lynch Syndrome Screening Across Multiple Healthcare Systems: Identifying Strategies to Facilitate and Maintain Programs in Different Organizations Contexts

To describe and explain variations in Lynch syndrome (LS) screening implementation across healthcare systems and create a toolkit for implementing LS screening.

Investigators: Su-Ying Liang, Ph.D., Monique de Bruin, M.D., MPH, External PI, Principal Investigator 

HOMBRE (Hombres con Opciones para Mejorar el Bienestar y bajar el Riesgo de Enfermedades crónicas)

A pragmatic, comparative effectiveness trial: obese Latino men will receive, by random assignment, the HOMBRE intervention or a minimal intensity intervention.

Investigator: Kristen M.J. Azar, R.N., BSN, MSN/MPH 

Lung Function Improvement After Bronchoscopic Lung Volume Reduction With Pulmonx Endobronchial Valves Used in Treatment of Emphysema (LIBERATE)

This study investigates the safety and effectiveness of the Pulmonx EBV for treating emphysema symptoms as compared to a standard medical therapy alone.

Investigator: Ganesh Krishna, M.D. 

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