--- title: "Asthma outcomes: Quality of life | Sutter Health" description: "NIH & other federal agencies convened an expert group to recommend standardized measures of the impact of asthma on QOL for future asthma clinical research." url: "https://www.sutterhealth.org/research/publications/asthma-outcomes-quality-of-life-1055312634" --- 1. [Home](https://www.sutterhealth.org/) / 2. [Research](https://www.sutterhealth.org/research) / 3. [Research publications](https://www.sutterhealth.org/research/publications) / 4. Asthma outcomes: Quality of life # Asthma outcomes: Quality of life Wilson SR, Rand CS, Cabana MD, Foggs MB, Halterman JS, Olson L, Vollmer WM, Wright RJ, & Taggart V _J Allergy Clin Immunol. 129:S88-123. (e-published March 1_ _2012). Doi: 10.1016/j.jaci.2011.12.988)_ 2012-03-01 ## Abstract ### Background “ Asthma -related quality of life ” (QOL) refers to the perceived impact that asthma has on the patient’s QOL. ### Objective National Institutes of Health institutes and other federal agencies convened an expert group to recommend standardized measures of the impact of asthma on QOL for use in future asthma clinical research. ### Methods We reviewed published documentation regarding the development and psychometric evaluation; clinical research use since 2000; and extent to which the content of each existing QOL instrument provides a unique, reliable, and valid assessment of the intended construct. We classified instruments as core (required in future studies), supplemental (used according to the study’s aims and standardized), or emerging (requiring validation and standardization). This work was discussed at an National Institutes of Health-organized workshop convened in March 2010 and finalized in September 2011. ### Results Eleven instruments for adults and 6 for children were identified for review. None qualified as core instruments because they predominantly measured indicators of asthma control (symptoms and/or functional status); failed to provide a distinct, reliable score measuring all key dimensions of the intended construct; and/or lacked adequate psychometric data. ### Conclusions In the absence of existing instruments that meet the stated criteria, currently available instruments are classified as either supplemental or emerging. Research is strongly recommended to develop and evaluate instruments that provide a distinct, reliable measure of the patient’s perception of the impact of asthma on all of the key dimensions of QOL, an important outcome that is not captured in other outcome measures. [PubMed abstract](http://www.jacionline.org/article/S0091-6749\(11\)02957-5/abstract) ## Research topics - [Asthma](https://www.sutterhealth.org/research-search-results?query=%22%5C%22Asthma%5C%22%22) ## Related publications [View all publications](https://www.sutterhealth.org/research-search-results?verticalKey=research_publication) - Publication ### [Secondhand tobacco smoke in children with asthma: sources of and parental perceptions about exposure in children and parental readiness to change.](https://www.sutterhealth.org/research/publications/parents-smoking-and-children-with-asthma-1055312631) Farber HJ, Knowles SB, Brown NL, Caine L, Luna V, Qian Y, Lavori P, Wilson SR. Chest. 133(6):1367-74. doi: 10.1378/chest.07-2369. Epub 2008 Mar 13. 2008 Jun 01 - Publication ### [Mediators of asthma outcomes](https://www.sutterhealth.org/research/publications/mediators-of-asthma-outcomes-1055312653) Rand CS, Wright RJ, Cabana MD, Foggs MB, Halterman JS, Olson L, Vollmer WM, Wilson SR, Taggart V. J Allergy Clin Immunol. 129(3 Suppl):S136-41. 2012 Mar 01 - Publication ### [Shared treatment decision making improves adherence and outcomes in poorly controlled asthma.](https://www.sutterhealth.org/research/publications/shared-decision-making-improves-asthma-outcomes-1055312698) Wilson SR, Strub P, Buist AS, Knowles SB, Lavori PW, Lapidus J, Vollmer WM; Better Outcomes of Asthma Treatment (BOAT) Study Group. Am J Respir Crit Care Med. 181(6):566-77. doi: 10.1164/rccm.200906-0907OC. Epub 2009 Dec 17. 2010 Mar 15 - Publication ### [Performance of the Asthma Impact on Quality of Life Scale (A-IQOLS) in diverse asthma research populations and demographic sub-groups.](https://www.sutterhealth.org/research/publications/asthma-impact-on-quality-of-life-scale-performance-in-pops-1055312339) Wilson SR, Wise RA, Castro M, Mulligan MJ, Ayala E, Chausow A, Huang Q, Gummidipundi S. J Allergy Clin Immunol. pii: S0091-6749(18)30634-1. doi: 10.1016/j.jaci.2018.02.056. \[Epub ahead of print\] 2018 May 03 - Publication ### [Electronic health record-based assessment of oral corticosteroid use in a population of primary care patients with asthma: an observational study.](https://www.sutterhealth.org/research/publications/oral-corticosteroid-use-in-pts-with-asthma-using-ehrs-1055312604) Allen-Ramey FC, Nelsen LM, Leader JB, Mercer D, Kirchner HL, Jones JB. Allergy Asthma Clin Immunol. 9(1):27. doi: 10.1186/1710-1492-9-27. 2013 Aug 07 [View all publications](https://www.sutterhealth.org/research-search-results?verticalKey=research_publication) ```json {"@context":"https://schema.org","@type":"MedicalOrganization","name":"Sutter Health","@id":"https://www.sutterhealth.org/#medicalorganization","url":"https://www.sutterhealth.org","logo":"https://www.sutterhealth.org/static/images/sutter-health-logo.svg","address":{"@type":"PostalAddress","streetAddress":"2200 River Plaza Drive","addressLocality":"Sacramento","addressRegion":"CA","postalCode":"95833","addressCountry":"US"},"areaServed":{"@type":"AdministrativeArea","name":"California"},"sameAs":["https://www.facebook.com/SutterHealth","https://www.instagram.com/sutterhealth/","https://x.com/SutterHealth","https://www.youtube.com/sutterhealth","https://www.linkedin.com/company/sutter-health","https://en.wikipedia.org/wiki/Sutter_Health"]} ``` ```json {"@context":"https://schema.org","@type":"BreadcrumbList","@id":"https://www.sutterhealth.org/research/publications/asthma-outcomes-quality-of-life-1055312634#breadcrumblist","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https://www.sutterhealth.org/"},{"@type":"ListItem","position":2,"name":"Research","item":"https://www.sutterhealth.org/research"},{"@type":"ListItem","position":3,"name":"Research publications","item":"https://www.sutterhealth.org/research/publications"},{"@type":"ListItem","position":4,"name":"Asthma outcomes: Quality of life"}]} ``` ```json {"@context":"https://schema.org","@type":"MedicalScholarlyArticle","@id":"https://www.sutterhealth.org/research/publications/asthma-outcomes-quality-of-life-1055312634#medicalscholarlyarticle","name":"Asthma outcomes: Quality of life","headline":"Asthma outcomes: Quality of life","abstract":"Background “Asthma-related qualityoflife” (QOL) refers to the perceived impact that asthma has on the patient’s QOL. Objective National Institutes of Health institutes and other federal agencies convened an expert group to recommend standardized measures of the impact ofasthma on QOL for use in future asthma clinical research. Methods We reviewed published documentation regarding the development and psychometric evaluation; clinical research use since 2000; and extent to which the content of each existing QOL instrument provides a unique, reliable, and valid assessment of the intended construct. We classified instruments as core (required in future studies), supplemental (used according to the study’s aims and standardized), or emerging (requiring validation and standardization). This work was discussed at an National Institutes of Health-organized workshop convened in March 2010 and finalized in September 2011. Results Eleven instruments for adults and 6 for children were identified for review. None qualified as core instruments because they predominantly measured indicators ofasthma control (symptoms and/or functional status); failed to provide a distinct, reliable score measuring all key dimensions of the intended construct; and/or lacked adequate psychometric data. Conclusions In the absence of existing instruments that meet the stated criteria, currently available instruments are classified as either supplemental or emerging. Research is strongly recommended to develop and evaluate instruments that provide a distinct, reliable measure of the patient’s perception of the impact ofasthma on all of the key dimensions of QOL, an important outcome that is not captured in other outcome measures.","description":"NIH & other federal agencies convened an expert group to recommend standardized measures of the impact of asthma on QOL for future asthma clinical research.","keywords":["Asthma"],"datePublished":"2012-03-01","url":"https://www.sutterhealth.org/research/publications/asthma-outcomes-quality-of-life-1055312634","inLanguage":"en-US","identifier":[{"@type":"PropertyValue","propertyID":"DOI","value":"10.1016/j.jaci.2011.12.988"}],"sameAs":["https://doi.org/10.1016/j.jaci.2011.12.988"],"isPartOf":{"@type":"Periodical","name":"J Allergy Clin Immunol"},"author":[{"@type":"Person","name":"Wilson SR"},{"@type":"Person","name":"Rand CS"},{"@type":"Person","name":"Cabana MD"},{"@type":"Person","name":"Foggs MB"},{"@type":"Person","name":"Halterman JS"},{"@type":"Person","name":"Olson L"},{"@type":"Person","name":"Vollmer WM"},{"@type":"Person","name":"Wright RJ"},{"@type":"Person","name":"Taggart V"}],"sourceOrganization":{"@type":"MedicalOrganization","name":"Palo Alto Medical Foundation Research Institute"},"about":[{"@type":"DefinedTerm","name":"Asthma","url":"https://www.sutterhealth.org/research-search-results?facets=%5B%7B%22i%22%3A%22c_researchTopics.name%22%2C%22v%22%3A%5B%22Asthma%22%5D%7D%5D&verticalKey=research_publication"}],"mainEntityOfPage":{"@type":"WebPage","@id":"https://www.sutterhealth.org/research/publications/asthma-outcomes-quality-of-life-1055312634","breadcrumb":{"@id":"https://www.sutterhealth.org/research/publications/asthma-outcomes-quality-of-life-1055312634#breadcrumblist"}}} ```