--- title: "HCSRN workshop on pt engagement in research | Sutter Health" description: "Engaging co-equal patient partners in research requires skills not normally used or valued in scientific research methods and requires longer timelines." url: "https://www.sutterhealth.org/research/publications/hcsrn-workshop-pt-engagement-research-1055312503" --- 1. [Home](https://www.sutterhealth.org/) / 2. [Research](https://www.sutterhealth.org/research) / 3. [Research publications](https://www.sutterhealth.org/research/publications) / 4. HCSRN workshop on pt engagement in research # Sharing experiences and expertise: the Health Care Systems Research Network workshop on patient engagement in research. Madrid S, Tuzzio L, Stults CD, Wright LA, Napolitano G, Dillon E, Tabano H, & Greene SM. _J Patient Cent Res Rev. 2016;3:159-66._ 2016-08-12 ## Abstract The Health Care Systems Research Network’s (HCSRN) Patient Engagement in Research Scientific Interest Group (PER SIG) held a half-day workshop for researchers attending HCSRN’s 22nd annual conference, April 16, 2016, in Atlanta, Georgia. The workshop blended didactic and interactive content to facilitate co-learning. Both researchers and patient partners developed the content, including three broad topics: engagement of patient partners in developing research studies, nurturing partnerships, and assessing the impact of patient engagement in research. Each module presented approaches relevant to the specific topic, including lessons from the literature and in-the-field experience. Patient partners reflected on their experience related to each module, and the interactive portion included small group exercises and in-depth discussion. Workshop attendees (n=32) collectively contributed to suggestions for future work in the area of patient-engaged research. Conclusions reached by workshop planners and attendees included the recognition that engaging patient partners in research requires a set of skills not normally used or even valued in scientific research methods and requires longer timelines than those generally accepted by research funding organizations. Effective engagement requires a paradigm shift from researchers as all-knowing to scientific team members who acknowledge the importance of patient partners as co-equal. When engaging patients in research, every aspect of engagement should be conducted with an emphasis on equality among partners and the stated agreement that patient partners bring valid expertise––their experiences as patients––to the research process. [PubMed abstract](http://digitalrepository.aurorahealthcare.org/jpcrr/vol3/iss3/9/) ![Cheryl Stults, Ph.D.](https://dyn.mktgcdn.com/p/3IhveEwq-t5WoqAzSNGeAr-4g4yrj4v7x1QcPGdCX_s/fit=crop,gravity=auto,dpr=2,width=188,height=250,quality=100) Cheryl Stults, Ph.D. Principal investigator [View profile](https://www.sutterhealth.org/research/investigators/cheryl-stults-phd-1049681000) ## Research topics - [Health Services](https://www.sutterhealth.org/research-search-results?query=%22%5C%22Health+Services%5C%22%22) ## Related publications [View all publications](https://www.sutterhealth.org/research-search-results?verticalKey=research_publication) - Publication ### [First Look - Stanford Medicine X PCORI Panel.](https://www.sutterhealth.org/research/publications/first-look-stanford-medicine-x-pcori-panel-1055312772) Tai-Seale M. YouTube video. 2013 Sep 27 - Publication ### [Engaging patients and stakeholders in preresearch: findings from the Pipeline to Proposal Awards Initiative.](https://www.sutterhealth.org/research/publications/engaging-patients-stakeholders-in-preresearch-1055312843) Bayne AI, Dullabh P, Skillman M, Ubri P, Rotondo C, Zainulbhai S, Frosch DL, Devers KJ. J Comp Eff Res. doi: 10.2217/cer-2019-0203. \[Epub ahead of print\] 2020 Jul 16 - Publication ### [Creating a “Zone of Openness” at the Doctor’s Office.](https://www.sutterhealth.org/research/publications/create-a-zone-of-openness-at-the-doctors-office-1055312775) Tai-Seale M. Patient-Centered Outcomes Research Institute website. 2013 Sep 10 - Publication ### [Function of the medical team quarterback: patient, family, and physician perspectives on team care coordination in patient- and family-centered primary care.](https://www.sutterhealth.org/research/publications/team-care-coordination-pt-family-centered-primary-care-1055312638) Gray MF, Sweeney J, Nickel W, Minniti M, Coleman K, Johnson K, Mroz T, Forss B, Reid R, Frosch D, Hsu C. Perm J. 2019;23. doi: 10.7812/TPP/18.147. Epub. 2019 Aug 26 - Publication ### [What's keeping us so busy in primary care?](https://www.sutterhealth.org/research/publications/what-is-keeping-us-so-busy-in-primary-care-1055312677) Tai-Seale M. N Engl J Med. 363(5):495; author reply 496. doi: 10.1056/NEJMc1006151. 2010 Jul 29 [View all publications](https://www.sutterhealth.org/research-search-results?verticalKey=research_publication) ```json {"@context":"https://schema.org","@type":"MedicalOrganization","name":"Sutter Health","@id":"https://www.sutterhealth.org/#medicalorganization","url":"https://www.sutterhealth.org","logo":"https://www.sutterhealth.org/static/images/sutter-health-logo.svg","address":{"@type":"PostalAddress","streetAddress":"2200 River Plaza Drive","addressLocality":"Sacramento","addressRegion":"CA","postalCode":"95833","addressCountry":"US"},"areaServed":{"@type":"AdministrativeArea","name":"California"},"sameAs":["https://www.facebook.com/SutterHealth","https://www.instagram.com/sutterhealth/","https://x.com/SutterHealth","https://www.youtube.com/sutterhealth","https://www.linkedin.com/company/sutter-health","https://en.wikipedia.org/wiki/Sutter_Health"]} ``` ```json {"@context":"https://schema.org","@type":"BreadcrumbList","@id":"https://www.sutterhealth.org/research/publications/hcsrn-workshop-pt-engagement-research-1055312503#breadcrumblist","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https://www.sutterhealth.org/"},{"@type":"ListItem","position":2,"name":"Research","item":"https://www.sutterhealth.org/research"},{"@type":"ListItem","position":3,"name":"Research publications","item":"https://www.sutterhealth.org/research/publications"},{"@type":"ListItem","position":4,"name":"HCSRN workshop on pt engagement in research"}]} ``` ```json {"@context":"https://schema.org","@type":"MedicalScholarlyArticle","@id":"https://www.sutterhealth.org/research/publications/hcsrn-workshop-pt-engagement-research-1055312503#medicalscholarlyarticle","name":"Sharing experiences and expertise: the Health Care Systems Research Network workshop on patient engagement in research.","headline":"HCSRN workshop on pt engagement in research","abstract":"The Health Care Systems Research Network’s (HCSRN) Patient Engagement in Research Scientific Interest Group (PER SIG) held a half-day workshop for researchers attending HCSRN’s 22nd annual conference, April 16, 2016, in Atlanta, Georgia. The workshop blended didactic and interactive content to facilitate co-learning. Both researchers and patient partners developed the content, including three broad topics: engagement of patient partners in developing research studies, nurturing partnerships, and assessing the impact of patient engagement in research. Each module presented approaches relevant to the specific topic, including lessons from the literature and in-the-field experience. Patient partners reflected on their experience related to each module, and the interactive portion included small group exercises and in-depth discussion. Workshop attendees (n=32) collectively contributed to suggestions for future work in the area of patient-engaged research. Conclusions reached by workshop planners and attendees included the recognition that engaging patient partners in research requires a set of skills not normally used or even valued in scientific research methods and requires longer timelines than those generally accepted by research funding organizations. Effective engagement requires a paradigm shift from researchers as all-knowing to scientific team members who acknowledge the importance of patient partners as co-equal. 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