--- title: "Trust with diverse populations in precision med research. | Sutter Health" description: "Based on focus group findings, we make suggestions for research institutions seeking to cultivate long-term, trusting relationships with patients." url: "https://www.sutterhealth.org/research/publications/trust-with-diverse-populations-in-precision-med-research-1055312343" --- 1. [Home](https://www.sutterhealth.org/) / 2. [Research](https://www.sutterhealth.org/research) / 3. [Research publications](https://www.sutterhealth.org/research/publications) / 4. Trust with diverse populations in precision med research. # Beyond consent: building trusting relationships with diverse populations in precision medicine research. Kraft SA, Cho MK, Gillespie K, Halley M, Varsava N, Ormond KE, Luft HS, Wilfond BS, & Soo-Jin Lee S. _Am J Bioeth. 18(4):3-20. doi: 10.1080/15265161.2018.1431322._ 2018-04-01 ## Abstract With the growth of precision medicine research on health data and biospecimens, research institutions will need to build and maintain long-term, trusting relationships with patient-participants. While trust is important for all research relationships, the longitudinal nature of precision medicine research raises particular challenges for facilitating trust when the specifics of future studies are unknown. Based on focus groups with racially and ethnically diverse patients, we describe several factors that influence patient trust and potential institutional approaches to building trustworthiness. Drawing on these findings, we suggest several considerations for research institutions seeking to cultivate long-term, trusting relationships with patients: (1) Address the role of history and experience on trust, (2) engage concerns about potential group harm, (3) address cultural values and communication barriers, and (4) integrate patient values and expectations into oversight and governance structures. [PubMed abstract](https://www.ncbi.nlm.nih.gov/pubmed/29621457) ## Research topics - [Genetics](https://www.sutterhealth.org/research-search-results?query=%22%5C%22Genetics%5C%22%22) - [Health Services](https://www.sutterhealth.org/research-search-results?query=%22%5C%22Health+Services%5C%22%22) ## Related publications [View all publications](https://www.sutterhealth.org/research-search-results?verticalKey=research_publication) - Publication ### [The Healthcare Systems Research Network (HCSRN) as an environment for dissemination and implementation research: a case study of developing a multi-site research study in precision medicine.](https://www.sutterhealth.org/research/publications/hcsrn-as-environment-for-implementation-research-1055312447) Rahm AK, Ladd I, Burnett-Hartman AN, Epstein MM, Lowery JT, Lu CY, Pawloski PA, Sharaf RN, Liang SY, Hunter JE. 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While trust is important for all research relationships, the longitudinal nature of precision medicine research raises particular challenges for facilitating trust when the specifics of future studies are unknown. Based on focus groups with racially and ethnically diverse patients, we describe several factors that influence patient trust and potential institutional approaches to building trustworthiness. Drawing on these findings, we suggest several considerations for research institutions seeking to cultivate long-term, trusting relationships with patients: (1) Address the role of history and experience on trust, (2) engage concerns about potential group harm, (3) address cultural values and communication barriers, and (4) integrate patient values and expectations into oversight and governance structures.","description":"Based on focus group findings, we make suggestions for research institutions seeking to cultivate long-term, trusting relationships with patients.","keywords":["Genetics","Health Services"],"datePublished":"2018-04-01","url":"https://www.sutterhealth.org/research/publications/trust-with-diverse-populations-in-precision-med-research-1055312343","inLanguage":"en-US","identifier":[{"@type":"PropertyValue","propertyID":"PMID","value":"29621457"},{"@type":"PropertyValue","propertyID":"DOI","value":"10.1080/15265161.2018.1431322"}],"sameAs":["https://pubmed.ncbi.nlm.nih.gov/29621457/","https://doi.org/10.1080/15265161.2018.1431322"],"isPartOf":{"@type":"Periodical","name":"Am J Bioeth"},"author":[{"@type":"Person","name":"Kraft SA"},{"@type":"Person","name":"Cho MK"},{"@type":"Person","name":"Gillespie K"},{"@type":"Person","name":"Halley M"},{"@type":"Person","name":"Varsava N"},{"@type":"Person","name":"Ormond KE"},{"@type":"Person","name":"Luft HS"},{"@type":"Person","name":"Wilfond BS"},{"@type":"Person","name":"Soo-Jin Lee S"}],"sourceOrganization":{"@type":"MedicalOrganization","name":"Palo Alto Medical Foundation Research Institute"},"about":[{"@type":"DefinedTerm","name":"Genetics","url":"https://www.sutterhealth.org/research-search-results?facets=%5B%7B%22i%22%3A%22c_researchTopics.name%22%2C%22v%22%3A%5B%22Genetics%22%5D%7D%5D&verticalKey=research_publication"},{"@type":"DefinedTerm","name":"Health Services","url":"https://www.sutterhealth.org/research-search-results?facets=%5B%7B%22i%22%3A%22c_researchTopics.name%22%2C%22v%22%3A%5B%22Health+Services%22%5D%7D%5D&verticalKey=research_publication"}],"mainEntityOfPage":{"@type":"WebPage","@id":"https://www.sutterhealth.org/research/publications/trust-with-diverse-populations-in-precision-med-research-1055312343","breadcrumb":{"@id":"https://www.sutterhealth.org/research/publications/trust-with-diverse-populations-in-precision-med-research-1055312343#breadcrumblist"}}} ```