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Using Mobile Technology and Analytics to Track Outcomes in MS Patients

Description

The goal of this project is to develop and pilot test an early-stage prototype-protocol to routinely obtain patient-generated data (PGD) by mobile phone application.

This proposal involves integrating a mobile application (Floodlight) for collection of PGD between visits into existing infrastructure, translating PGD data into a clinically useful format, pilot testing options for summarizing and presenting this information to providers, and identifying key drivers of adoption of the protocol for both patients and providers.

Principal Investigator

J.B. Jones, PhD, MBA

Co-Investigator(s)

Xiaowei (Sherry) Yan, PhD, MS 

Funder

Genentech Foundation

Start Date

January 01, 2018

End Date

December 30, 2019

Research Topics

  • Disease Management
  • MS (Multiple Sclerosis)
  • Medical Informatics

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Precision Medicine for Multiple Sclerosis: Making It Work (MS-SHARE)

Develop an app that support access to clinical data and shared decision-making, predict disease course, and guide disease management.

Investigators: J.B. Jones, PhD, MBA, Xiaowei (Sherry) Yan, PhD, MS 

Quantifying 2D and 3D MRI Imaging For Improving MS Diagnosis, Treatment, And Clinical Care

Create a longitudinal proof-of-concept MS research database (MSClinQ) that can support clinical queries, and can be updated with new tx, dx tools, care options

Investigators: J.B. Jones, PhD, MBA, Xiaowei (Sherry) Yan, PhD, MS 

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