The goal of this proposal is to describe, compare, and explain variations in Lynch syndrome (LS) screening implementation across multiple healthcare systems and create a comprehensive, customizable organizational toolkit for implementing LS screening.
PI is Alanna K. Rahm, PhD, MS, LGC, Geisinger Medicine Institute. Site PI is Su-Ying Liang, Ph.D.
Collaborating sites include the following:
Andrea N. Burnett-Hartmann, Ph.D., MPH, Kaiser Permanente Colorado; Mara Epstein, Sc.D., Meyers Primary Care; Jessica Enzell Hunter, Ph.D., Kaiser Permanente Northwest; Christine Y. Lu, Ph.D., Harvard Pilgrim Health Care Institute; Pamala Palowski, Pharm.D., Health Partners; Ravi Sharaf, M.D., Northwell Health; and Robert Weil, M.D., Catholic Health Initiatives.
Su-Ying Liang, Ph.D., External PI, Principal Investigator
National Cancer Institute
Coverage, Price, and Reimbursement for Multigene Tests for Cancer and Related Conditions
Investigator: Su-Ying Liang, Ph.D.
Precision Medicine for Multiple Sclerosis: Making It Work (MS-SHARE)
Investigators: J.B. Jones, PhD, MBA, Xiaowei (Sherry) Yan, PhD, MS
Risk-Benefit Trade-Offs for Whole Genome Sequencing
Investigators: External PI, Principal Investigator, Su-Ying Liang, Ph.D.